You Are Not Alone
A sarcoma diagnosis can feel overwhelming. We've gathered the most trusted resources, organizations, and guidance to help patients and families navigate every step of the journey.
Where to Start
If you or a loved one has been diagnosed with sarcoma, the most important first step is to seek care at a specialized sarcoma center. Sarcoma is rare, and outcomes are significantly better when treated by a multidisciplinary team with specific sarcoma expertise.
Ask your oncologist for a referral to a sarcoma specialist or a National Cancer Institute (NCI)-designated cancer center.
Specialized Sarcoma Centers
Treatment at a dedicated sarcoma center dramatically improves outcomes. These institutions have multidisciplinary teams with deep sarcoma expertise.
Massachusetts General Hospital
Boston, MA
Multidisciplinary sarcoma program with surgical, medical, and radiation oncology
Dana-Farber Cancer Institute
Boston, MA
NCI-designated comprehensive cancer center with a dedicated sarcoma program
Yale Cancer Center
New Haven, CT
NCI-designated center with sarcoma specialists across all disciplines
Brigham and Women's Hospital
Boston, MA
Orthopedic oncology and soft tissue sarcoma surgical expertise
National Organizations
These organizations provide education, advocacy, research funding, and direct support for sarcoma patients and families nationwide.
Sarcoma Foundation of America
National
Research grants, patient education, and advocacy
Sarcoma Alliance
National
Guidance, education, and peer support for sarcoma patients
National Cancer Institute
National
Authoritative clinical information and clinical trial listings
American Cancer Society
National
Practical support, lodging assistance, and transportation programs
Rein in Sarcoma
National
Patient support, education, and advocacy dedicated exclusively to sarcoma
Alex's Lemonade Stand Foundation
National
Childhood cancer research funding, family support, and awareness programs
Northwest Sarcoma Foundation
National
The oldest sarcoma nonprofit globally — education, patient grants, research funding, and community support since 1996
Local New England Organizations
These New England-based organizations provide community support, awareness, and resources close to home for sarcoma patients and families across the region.
Sarcoma Awareness of New England (SANE)
New England
Founded by Bill and Julie Witham — raising awareness, education, and advocacy for sarcoma patients and families across Massachusetts and New Hampshire
Massachusetts General Hospital Sarcoma Program
Boston, MA
Comprehensive multidisciplinary sarcoma care serving New England patients
Dana-Farber / Brigham Sarcoma Center
Boston, MA
Dedicated sarcoma program combining Dana-Farber and Brigham and Women's expertise
Norris Cotton Cancer Center
Lebanon, NH
NCI-designated cancer center serving New Hampshire and Vermont with oncology specialists
UMass Memorial Cancer Center
Worcester, MA
Regional cancer care serving central Massachusetts with sarcoma-experienced oncologists
Joe Andruzzi Foundation (JAF)
New England
Provides financial assistance and emotional support to New England cancer patients and their families during treatment
Amy's Treat
Seacoast, NH
Seacoast New Hampshire nonprofit providing financial assistance and support to cancer patients and their families
Annie's Angels
New Hampshire
New Hampshire organization offering support and resources to cancer patients and families throughout the state
Grateful Friends
Massachusetts
Massachusetts-based nonprofit providing compassionate support and assistance to those affected by cancer
Dempsey Center
Maine & Greater New England
Free integrative care, counseling, and support services for people affected by cancer across Maine and Greater New England
Financial Assistance
Cancer treatment can create significant financial strain. These programs help patients access support for treatment costs, travel, and daily living expenses.
Patient Advocate Foundation
National
Case management, financial aid, and insurance assistance
CancerCare
National
Free counseling, support groups, and limited financial assistance
HealthWell Foundation
National
Copay and premium assistance for cancer patients
NeedyMeds
National
Drug assistance programs and discount cards
Emotional Support & Community
Connecting with others who understand your experience can be profoundly healing. These resources offer counseling, peer support, and community.
Cancer Support Community
National
Free support groups, counseling, and wellness programs
Imerman Angels
National
One-on-one peer mentorship matching patients with survivors
LIVESTRONG Foundation
National
Navigation services and fertility preservation support
Stupid Cancer
National
Community and resources specifically for young adult cancer patients
Guidance for Caregivers & Families
Caring for someone with sarcoma is both an act of love and a significant challenge. These tips can help you support your loved one while taking care of yourself.
Learn about the diagnosis
Understanding the specific sarcoma subtype, stage, and treatment plan helps you ask better questions and advocate effectively at appointments.
Build your care team
Beyond the medical team, connect with a social worker, patient navigator, and mental health professional. You don't have to manage everything alone.
Keep organized records
Maintain a binder or digital folder with pathology reports, imaging results, treatment summaries, and medication lists. This is invaluable when seeking second opinions.
Seek a second opinion
For a rare cancer like sarcoma, a second opinion at a specialized center is not just acceptable — it is strongly encouraged by most oncologists.
Ask about clinical trials
Clinical trials may offer access to promising new treatments. Ask your oncologist and search ClinicalTrials.gov for sarcoma-specific studies.
Take care of yourself
Caregiver burnout is real. Prioritize your own sleep, nutrition, and emotional health. You can only give your best when you are at your best.
Need Personal Guidance?
Our team can help connect you with local resources, answer questions about sarcoma, and point you toward the right specialists in New England.
Contact Us